August 31, 2010

Remembering the Mainland

Jess here:

Today I woke up with feelings of joyful anticipation for the day, something I haven't felt for a while. Here's why:
1) My doctor changed my anti-nausea meds to something stronger, which means that I can now eat breakfast without throwing up and enjoy the rest of my meals without that horrible pervading feeling of nausea. Food is such a wonderful thing!
2) We're moving to a permanent address in a few days!
3) We get to go watch my brother-in-law play baseball tonight. I played baseball for many years and was about to join a recreational team in Beijing before we left.
4) I did not wake up with a splitting headache for the first time in days

In the last while, we've had the sensation of getting a little "China starved". Here is the evidence (how many more lists can I make?):
1) I am currently in the process of simultaneously reading three Chinese biographies (with another ten or so lined up),
2) We've been searching Youtube and Youku (the Chinese version of Youtube) for Chinese music videos, and
3) We have watched two Chinese movies in the last week.

Each one of these things has, in its own way evoked very clear and real memories of China in me. These are the kind of memories that have taste, smell and sound attached to them. The ones that you can almost relive they feel so real. Sometimes I physically have to stop reading my books, because they are so real to me.

Much as I hated the Chinese music videos while I was there, they now remind me of grocery shopping or riding the bus. That in turn makes me remember everything that I enjoyed about riding the bus. I know, I know, read far enough back on this blog and you'll remember everything I hated about the bus. Nonetheless, there were things that I loved too.

For example, I loved sitting on the bus and watching the elderly people. They all have so much character, so much independence and yet demand so much respect (I think). I would find myself staring at them and wondering about their lives. I also enjoyed it when the other passengers on the bus would assume that I didn't understand them and talk about me when I was right there. Thinking about riding the bus makes me think of the ticket woman who yells loudly in everyone's ears (picture). Then there is the man/men that every bus has (no matter what time of day) that smells like a brewery. Or there is the young boyfriend that drapes himself so heavily on his girlfriend's shoulder in a "cutesy" way, that I begin to feel very sorry for the girlfriend who has to slouch off to the side in order to compensate. Then there were the horrible men's fashion shows that were always playing on the TV. See example above to the left!

Watching Chinese movies with English subtitles is also an interesting experience now. They were not that widely available in Beijing (what's the use when everyone speaks Chinese?), but now that we have access to Youtube again, we can watch them. If we watch without subtitles, we are generally able to get the basic plot, but we end up missing a lot of the details. Movie Chinese tends to be very short and abrupt, or colloquial if you will. However, watching with subtitles is simultaneously educational ("Oh, did you hear the way that he said that? I never would have though of saying it that way!"), and yet distracting ("Weird, the translation totally missed part of what she said").

As to our own Chinese ability, we have not found ourselves forgetting it just yet. It seems to be sticking pretty good. We have attended a Chinese church on a number of occasions and instead of scratching our heads searching for words, it all comes pouring out in a joyful flood. We have also been skyping with some of our friends back in Beijing. James and I have decided that Chinese is our official "hospital language". When you find yourself spending a lot of time in crowded people places (as waiting rooms tend to be), it is very convenient to speak a language that most people don't understand. Of course, we have also learned the hard way that there are enough Chinese people around randomly that we probably shouldn't be cracking too many dirty jokes with each other!

As useful as having a hospital language can be, it does also have the effect of driving home the fact that we no longer NEED to know Chinese. Now it is a quaint, but sort of strange and useless tool that we have in our belts. It is easy to forget that this tool used to the most valuable one we had and that it was one that we carefully sharpened every day. When I was recovering from my biopsy last month, the nurses all thought that it was very cute that we were speaking Chinese together (almost as if we were wearing matching Hello Kitty backpacks). In Canada, speaking Chinese is cute and a little bit impressive, but in China it is just necessary. Nonetheless, we put too much time and energy into it to ignore it now. We have determined that we will attend the Chinese church weekly and try to bring home Chinese exchange students from the University (we’ll let them go eventually).

Funny story. The other night we were driving around near our old University and at a certain intersection we had to wait for a group of Chinese students to cross the street. They were walking extremely slowly, and James, forgetting that his window was open, yelled in the voice of a Beijing man who has been smoking for 40 years, "Kuai yidianr ba!" (Hurry up will ya!). One young man looked at us in astonishment and nearly tripped over his feet to hear a skinhead Canadian yelling at him to hurry up in Chinese (Beijing accent no less). I burst out laughing and gave the guy a broad smile, just to let him know that he wasn't crazy.

Recently we also had to go to the Manitoba Health office to get our health insurance issues taken care off. The couple in front of us in line was an elderly Chinese couple and they were speaking together in Mandarin. When they got to the counter, James and I were of course eavesdropping. Between the somewhat impatient clerk and the limited English of the woman, there was much miscommunication going on and the frustrations were mounting. You may ask yourselves why we did not quickly stand up and yell "I speak Chinese!" but there were a number of reasons why we did not. One was that the office security was very sensitive about the privacy of each individual case. The other was that we did not want to embarrass the woman. She was doing well enough to get by and we didn't want to show disrespect for her by diminishing her ability to speak English in front of a crowd of people. However, as soon as we got to the counter and mentioned to the employee that we could understand, he told us we should have come up and helped him out!

We have actually randomly passed a number of Chinese conversations on the street here in Winnipeg. The funny thing about it is that it is exactly like hearing snatches of an English conversation on the sidewalk. The topic is usually mundane and not very interesting. "That bill is due next month". “The Doctor said you should see him in two weeks”. “You know I hate salad”. But here is Winnipeg it sometimes comes as a shock to realize that without trying to, we just heard a Chinese conversation and understood it.

Another element of my reliving China experience is that I have still been contributing to some of the MCC work that I was involved in. As I work on my computer, doing my familiar tasks and duties, I find vivid images entering my mind. People, places, traveling, hotels, the food, the stories, so much! It's so tangible I could grab it! Somedays it is very hard not to let all of those thoughts and memories end with an abrupt, "Well I guess I'll never do that again".

While traveling James and I often found ourselves in situations where we had to attend banquets and eat tons and tons of food or risk insulting people. At the beginning this was hard to handle, especially when every meal was some big to-do and our gastrointestinal tracts felt like solid tubes of chilis and meat (in James' case, often raw meat). Oft times the meat was unsettlingly unrecognizable, but then there were the other times that it was extremely recognizable (served in the natural beauty of its whole animal form).
It was not uncommon to come home with an unpleasant case of watery bowels and an overwhelming desire to eat vegetables and fruit. Now we bemoan the fact that it took us a full six months or so to become accustomed the to spicy/burn-your-mouth-and-all-of-your-sphincters meat fests that these occasions were. It feels like we wasted six precious months of not fully appreciating food that we now love! This picture is a really representation of how food there would be for maybe eight people. The dishes would be stacked on each other multiple times and we would all attack them simultaneously with our chopsticks. Not very sanitary, but very satisfying!

Oh I suppose I'm just being melodramatic. Give me centre stage and I'll delivery a soliloquy to make your heart sob!

Farewell!

August 30, 2010

The Obsession with Hair Continues

Hey All. James here.

I figure that if Jessica gets a wig, then I get one too. However, I want to remain true to myself... no covering up the fact that I'm balding. So if I'm going to wear a wig, it's got to be a balding
wig!


Dark Man and Family

James here.

Inspired by Jessica's bid to create the zaniest family photo, I have decided to photoshop us into what I think is appropriately called Dark Man and Family.

Behold, Dark Man. The trouble is, he doesn't appear obviously photoshopped. I mean, I've worked on construction sites with guys like this! Very creepy.

In fact, I think I can tell you a bit about the man in this picture: his name is Pierre, and he's been banned for life from the Franz Motor Inn, after what has famously become known as the "April 3rd Incident". That scar on the left side of his nose? Don't even ask.



Dark Wife looks a little more photoshopped, with her Joker smile. However, you wouldn't guess right off the hop that she is big into curling, and that on any given night, you can find her glued to the TV, watching the Beautiful Game live or on scratchy old VHS cassettes. She's been known to punch game moderators in the face when they make a call she disagrees with--and she's even worse when she's actually one of the players.




Dark Ari is a cheerful lad, unaware of the hostilities that simmer in the upper tiers of the Dark Family. He receives mediocre grades in school, particularly in spelling, but he does will in gym class, which is enough to satisfy Mr. and Mrs. Dark.



When Dark Ari grows up, he hopes to own the Franz Motor Inn.



And last of all, we have Dark Jude. When Child and Family Services learned that he was sleeping in a cardboard box in a damp corner of the basement, they tried to take him away from the Dark Family. However, subsequent DNA testing revealed that he isn't a human boy at all, but rather a strange mutant possum. That explains his incredible love for dry cat food.

Family Photos and Capacity Building

Here is the long awaited family photo with all of us buzzed and beautiful. I include two different versions and James is creating his own version of our family photo. My family photos are mild renditions (coneheads and a few additions), but James' rendition of our family photo is a little more unique. Curious George joined us for the original shot because everytime Jude gets a buzz cut, he looks like a monkey (of whom Curious George just happens to be his favorite).


And here we have the Coneheads!

And here is a sneak peak into future blog posts: After shopping around James finally found a wig he likes (WHAT!) and we are officially moving into a permanent house this week. Hurray!

I have recently been reading the biography of Watchman Nee. This man was a Chinese Christian who taught and wrote many well recognized foundational Christian books. He had a huge influence among Chinese Christians during a very tumultuous time in Chinese history. Much more could be said about him, but it is his teaching that has hit me hard in the last few days.

He wrote that "Maturity is a matter of the enlargement of capacity. You must allow God to give you time to suffer beyond measure. Then your capacity will be enlarged. It takes hard times to mature a Christian. The fact is that you will never be the same after you pass through suffering. Either your capacity will be enlarged, you will become more hardened. For this reason, when you are experiencing hard times you must pay attention." He also wrote that if we try to avoid these times of suffering, it will only prolong the time that it takes for us to become mature in Christ.

I guess I can see how this could be that new perspective for me that I have been looking for, like I asked for at the end of the last posting. But what bothers me is that This perspective is largely based on suffering, and there something in me that is loath to call what I am going through "suffering". Discomfort, yes. But, if I am suffering, then I am doing so in a whole lot of comfort. I have people taking care of me who love me. Even when I can't eat, I still have food available. I lay my sick body in a soft bed. I feel that to call what I am going through "suffering" would be to do a serious discredit to those who have truly suffered. Not to mention, I don't want my "new" life perspective to be based on a martyr complex.

Second Attempt

We all remember the story of Jesus feeding the five thousand. There he was with his disciples and five thousand people were following him to listen to his preaching. They were hungry and had not eaten in days. The disciples suggested that Jesus send them home to find food, and Jesus in turn suggested that the disciples find food for them to eat. This of course was impossible, but a quick search revealed that one boy had brought a long a lunch of five little barley loaves and two small fish. Jesus blessed the food, and after he had blessed it, there was enough for everyone to eat with twelve baskets full of food left over.

In one of his last recorded sermons, Watchman Nee points this out. It didn't matter how much food Jesus started with. Even if he had had 100 loaves of bread and 200 fish (although it is far greater 5 loaves and 2 fish), it still would have been a miracle that the people were fed.

What matters is not how much they had to begin with, but the fact that Jesus' blessing was on it. I will poorly summarize Nee's words here for the sake of brevity. He says that blessing is the working of God where there is no explanation for it; where what we put in does not equal what is put out. If we think that his blessing is reliant on what we put in (our capacity), we limit God's abilities. However, when we realize that it is God's blessing that makes the outcome, we find out that the outcome is far beyond our capacity and even surpasses our wildest dreams.

I have zero capacity right now. I lay on a bed for half the day sleeping and vomiting. I'm exhausted and I struggle with depression (especially in the afternoon). My ears are inflamed and my eyes often feel like they have needles poking into them. I know God is with me, but I'm starting to feel very vulnerable right now.

But however small my capacity is, all I need is his blessing in order for what I do have to become a massive outpouring. So what do I have? I have his love. I have the assurance that Jesus has conquered death. I have a role. I have the assurance of Jesus' life inside of me and that as a child of God, I reflect his character and his nature to other people. I don't feel these things all the time. I would be lying if I said that I don't have days of serious doubts and depression. But feeling emotions is different than knowing truth. Even when I feel different emotions, I still know what the truth is. Unfortunately, feelings are much easier to pay attention to!

I suppose that I just contradicted myself. Suffering enlarges capacity... and yet capacity is nothing without God's blessing. So do I have my new perspective now? No, not by a long shot. Not any one of the things I read about or think about or that people tell me is going to offer me universal comfort. But I am being changed and transformed day by day. "For I am confident of this, that he who began a good work in you (me) will be faithful to perfect it until the day of Christ Jesus" (Philippians 1:6).

Don't worry. Lighterhearted posts are coming!

August 24, 2010

Needing a New Perspective

I suspect that there are a great many people who feel as if I have been in denial about my situation, talking about how blessed I am, how I want to use this opportunity I have been given and so on and so forth. I for one, think that I have been very open and honest about my experience thus far. The hard part is to continue to be open when some of these less enjoyable emotions kick in (as they have). But, I said that my goal was to document my journey, and the negative emotions are also part of this parcel.

One of the most humbling things that I have to reconcile myself to these days is the fact that I have zero independence. I am at risk for having spontaneous seizures (especially during the six weeks of receiving radiation treatment since it causes swelling in the brain), and this makes me the equivalent of an adult who has the freedom of a child. I can not be left home alone. I can not take care of the boys by myself. My driver's license has been revoked. Any type of cooking or chopping should be with someone else. I can't even go to my own doctor's appointments by myself. If I want to go to the corner store to buy something, I need to pull someone along with me.

It feels a bit like I've been tied on a string and hung around the necks of those around me. Everyday, James, my parents and I must review the day. Who will be home with the boys when? Who will be with Jessica when she needs to rest? Not only has my independence been removed, but the ability of those around me to function is also greatly limited.

What makes it even harder to swallow is that so far, I'm doing fine! I'm told that it is in the last half of my six weeks that the more cumulative effects kick in and that at that time, I'll probably be a pretty unhappy camper. But for now, I have learned how to control my nausea and exhaustion, and other than not having hair, you'd never guess that I have a brain tumor. I have a lot of small side effects, but they are the kinds of things that I am accustomed to ignoring in myself. Headache? Take some Tylenol, ignore it and it'll go away.

I find myself pondering a lot of "what if?" scenarios. It all happened so suddenly. Other than two incidents of pre-seizure symptoms (referred to as auras) in the two weeks leading up to my seizure, there were no signs, no warnings. I was busing around Beijing by myself, having stimulating and interesting conversations with any old Chinese person who decided they wanted to talk to me, going to the market by myself to bargain for our daily vegetables and then go home and cook them (by myself), flying to other far away Chinese cities for the day to having meetings with people, and able to stay at home with the boys by myself for days at a time so that James could do his work travel. I was playing an important role as an MCC volunteer, helping people.

What if that seizure had just never happened? Obviously the brain tumor would still be there, but what if we just hadn't known about it for another long time? What if I hadn't been instantly put on a regimen of medications? Would I feel more sick? What I be seizing all the time? What if we just hadn't known until one day I collapsed and never woke up again? Do I think that would be better? I don't know.

There is this idea of "the future" that has become a bit of a sore spot for me. I have mentioned this before. Yesterday evening, I felt driven to go for a walk "by myself" (walking up and down the same stretch so that my family could still monitor me). As I walked, I realized that all of my life I have always used walking by myself as a time to dream. When I was in middle school, I started walking the dirt mile roads around my hometown. I would go for hours at a time and spend the whole time dreaming about my future. When James and I started dating, we would walk those same mile roads and dream about our future together. After Ari was born we found a park that followed the river in Winnipeg and we would walk him in his stroller along that path for hours... always dreaming about the future.

Dreaming about the future for me has never been about scorning the present. It has never been done out of wishing that things were different. Thinking about my future has always been a product of being excited about the life that I do have! I always felt that there was so much potential and enjoyed what I was doing at the time, so it seemed like the future could only hold more exciting things. What could those exciting things be?

Yesterday I had an encounter with Jude that I felt summarized the way that I feel now about the future. It was also very telling about how my three year old is handling these circumstances. Jude has always been a much more cuddly boy than Ari. Up until we left for China, he was extremely attached to me, and even as he has become more independent, he still really enjoys getting his hugs and cuddles from me. So far, his reaction to our overthrown lives has been to pull away from me. Now, finally, after almost two months of this, he is tentatively starting to approach me again (like when I put him to bed the other night).

Last night the dam broke. He was crying about something completely unrelated and I was sitting with him in his room holding him. Suddenly he started sobbing huge gulping sobs, grabbing at me desperately, stroking my facing, squeezing me tight and saying over and over again, "Mommy, I want you! I want you!" I felt my heart get ripped open and the two of us cried together. It was as though he felt like he just couldn't get a hold of me, even though I was right there.

Obviously the encounter was heartbreaking for its own reasons, but it also occurred to me that the way that Jude was trying desperately to get a grasp of me is not unlike the way that I feel about the future. Slippery. Shadowy. Right in front of me but having no form.

Lord Jesus, I need a new perspective!